Fearless! A word that best describes Emmah Evans. This inspirational lady has many titles – Mother, Mentor, Motivational Speaker, Author and Ambassador for Cystic Fibrosis Australia and The Cure 4 CF Foundation. An elegant High Tea at the Intercontinental Hotel was organised by Emmah to help raise funds for the Cure 4 CF Foundation. Hosted by Channel Ten’s Rebecca Morse and entertainment by The Voice finalist Sarah Lloyde, the event exceeded Emmah’s expectations with a turnout of over 400 guests.
The High Tea was elegant and entertaining with traditional fare of savoury delights such as cucumber sandwiches as well as an array of tasty sweet treats. Raffles tickets were sold and a silent auction was also held to help raise the target of $5000. While the event mainly focused on Emmah, hearing her story of life’s ups and downs was not only inspiring but also humbling. We laughed, cried and empathised with this remarkable woman whilst learning more about the challenges of cystic fibrosis in the process.
Emmah was born with cystic fibrosis, a hereditary disorder affecting the exocrine glands. It causes the production of abnormally thick mucus leading to the blockage of the pancreatic ducts, intestines, and bronchi and often resulting in respiratory infection. At present there is no cure for CF but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it. One of the main objectives of the CFA Research Trust is to fund the research work.
Emmah’s life is a journey of self destruction to self discovery daring to dream and make those dreams come true. “My life isn’t easy, but I make the most of every day and want to encourage others to dream like they have no limits and reach for the stars. I would rather have a list of to do’s than a list of ‘impossible”. Life expectancy of a cystic fibrosis sufferer is 37 years on average. Having lived her childhood in and out of hospital, her determination to overcome obstacles such as her health, being bullied at school or losing close friends due to CF was truly touching.
After her biological parents learnt of her diagnosis of cystic fibrosis, Emmah was given up for adoption at only three weeks old. Her adoptive parents gave her the foundation on how to live with a disability. It’s easy to see how they influenced her to be the determined woman she is today. Her father Arnie, at the age of nine, broke his back and during his treatment developed a severe infection where his left leg and hip had to be removed. Further complications meant both kidneys had to be removed. That didn’t stop him from competing in the 1988 Seoul Olympics winning silver in weightlifting and doing day to day things like driving Emmah to school. Now that’s an inspiring man!
With a long list of achievements such as winning Girlfriend Magazine’s Girlfriend of the Year, becoming a model and TV presenter, the greatest achievement for Emmah was the birth of her two children. After being told that women with cystic fibrosis struggle to conceive this was another challenge that she was determined to conquer. Is there anything this woman can’t do?
Emmah Evans personality is both, delightful and charming. Having cystic fibrosis is not a deterrent for this inspirational young woman and what we took away after hearing her life’s journey is our own self determination and willingness to conquer life’s barriers no matter what we are faced with. If you would like to make a donation, an everyday hero account has been set up here Emmah Evans Every Day Hero or visit Cure 4 CF for more information.
With thanks to event sponsors Rex Airways, The Port Lincoln Hotel and The Calypso Tours for sponsoring the event, it’s now our chance to make a contribution. For more information, be sure to visit the Cure For CF website.